Written by: Jen Sloniger
Your Questions Answered is a blog series which addresses Project HOPEFUL blog readers’ most burning questions. Please submit your questions to: firstname.lastname@example.org
Today’s question is always a hot one. Several people wrote to ask us:
QUESTION: How do you decide whether or not to disclose your child’s HIV+ status. Who should I tell; who shouldn’t I tell? What is it like to be a disclosing family?
Disclosure is a very personal thing. Many families choose to disclose or not to disclose based on factors like the type of community they live in, the strength of the support system of friends and family around them, their personality type, and many other things.
Of course, Project HOPEFUL is an organization which is filled with advocates, the overwhelming majority having made the decision to disclose our children’s status. If you asked our disclosing staff members I think they’d tell you that a main impetus for disclosing is the desire to flush out stigma. HIV/AIDS is no one’s dirty little secret. The issue of whether or not a family should hide their child’s leukemia, or diabetes, or down syndrome is a NON issue. I’ve never heard anyone talk about it being that child’s story which only they should share. Kids are born with many diseases yet it seems that HIV/AIDS is the singular chronic disease everyone wants to shame children for having or at least quiet everyone from talking about. No one bats an eye when a mother blogs about her child’s congenital heart defect. No one condemns her for sharing such personal information about her child without her child’s consent…. See my point?
Those of us who have disclosed did so knowing there were risks. We realized it might […]